Illness - Encephalitis

God, a Stranger, and Tears (Part 2)

on phone

I mentioned in my last blog how getting a surprise can mean a lot. Time to share that getting a surprise can also change a bit of your life. I had received a phone call from a total stranger who heard about my illness and wanted to talk. She wanted to hear how it had affected me, as her daughter had also come down with Encephalitis. (1*)

That was the very first conversation I had ever had with anyone who experienced the serious illness I had gone through. Indeed, one priceless conversation. One piece of information she shared stood out.

“Marianne, you should check out this certain website,” she suggested. “It will get you contact with many others with your illness.”

My mouth dropped. “Really? Others who had what I had?”

I eagerly grabbed a pen and quickly scribbled down that website on the closest piece of paper I could find. After passing our thanks to each other for sharing our stories, I didn’t even blink before typing that website on my computer. I found it!  Encephalitis Global. (www.inspire.com)

I saw titles of different letters from different people. Titles like . . .

– My Hardest Encephalitis Problems

– My Family Doesn’t Understand 

– Who Else Is Feeling Alone?

– Five Years Since I got Hit With Encephalitis

The list went on and on. After clicking the first one, I couldn’t believe what I was reading.

This person knows exactly what it’s like!  (I bet I even said that out loud.) Then I checked another person’s title. I can relate to his problems, too!

Time to fit in that saying “died and gone to heaven,” because I felt like I had.                   My computer had just become my new best friend.

Business woman typing on keyboard

Slowly, my eyes were getting damp. I read more. Tears were accumulating.

Tears of joy, yet tears of sorrow. I guess those ten years of loneliness had piled up inside and it was time to pour them all out. Now sure, I did have my dear husband, children, plus family and friends, but my heart still ached inside feeling alone, so having found people who could understand caused me to let loose many tears.

Soon, however, tears of joy took over. People understand! I’M NO ALONE!

“I understand how you feel,” I replied to at least ten different people. I can’t even begin to describe how great it felt sharing parts of my story to people who understood. I felt even better when, only a few minutes later, someone replied back.

I’m talking to someone who knows what it’s like! They understand me, I understand them, and we can chat back and forth!  That website became my new companion, and I checked it out a few times every day. It felt like God was telling me, “Marianne, I know what I’ve planned for you can be tough, but I’m still with you. I love giving you surprises.”

Now, years later, I’m still connected to that website and can’t even begin to explain what a treasure it’s been reading and relating with many, even having few of those now as dear friends. 

Let me share one simple fact I learned as time went by after that call. God wants us to pray for and, when possible, comfort those in need. 

II Corinthians 1:3b-4 says – God of all comfort, who comforts us in all our tribulation, that we may be able to comfort those who are in any trouble, with the comfort with which we ourselves are comforted by God. 

At the beginning, the website helped and encouraged me immensely, talking with others who have gone through what I had gone through. Well, with years behind me, I now use it as my opportunity to encourage others. I’ve even Skyped and talked over the phone with a few, watching or listening to some shedding a few tears while giving them my ear.  I savored their thank-you e-mail letters they later sent.

About six years ago, an opportunity arrived for a few of us to begin an annual lunch gathering for those in the Northwest. Worth the drive each year, indeed.

E GROUP

And this summer, a yearly encephalitis conference will be in my Seattle area for the first time. I am ever-so thankful I can help put it together.

I’ll end here saying how I’m not in my own little world anymore, and God still hears my many thanks.

Question – Should you ask yourself if you can reach out to any who may be going through something you’ve experienced?  Believe me, it feels great if you do. Just keep in mind what Christ says in Luke 6:31 – Do to others as you would have them do to you.

I’d love it if you could pass me a note if you’ve used your rough road you’ve been on to help others. 

Illness - Encephalitis

How Sadness Showed Me God’s Presence

Screen Shot 2017-03-11 at 11.59.39 AMAre you one who makes your own abbreviations for words you find difficult to spell or those that are really long? For instance, ‘E’ is the letter I type instead of encephalitis, the word used most often to describe the illness I had years ago. (*1) Continue reading “How Sadness Showed Me God’s Presence”

Illness - Encephalitis

Unforgettable Forgettable Pictures

There is nothing new except what has been forgotten. —Marie Antoinette

Sermon-remember

Memories. Memories can be tough sometimes. Sure, everyone has things here and there they don’t remember. But for me, I only had things here and there I DID remember when I walked into that new hospital to help me recuperate after being hit with encephalitis. (*1)

Continue reading “Unforgettable Forgettable Pictures”

Illness - Encephalitis

Meet For The First Time . . . Again -part 2

door_edited-2

That same day I ‘woke-up,’ or the day after, in walked someone new.

“Marianne,” one of the doctors said, “someone’s here whom you knew before you got sick.”  In walked this man. 

Who is he? He’s not dressed like everyone else here. He . . . he sort of looks familiar, whoever he is.

“Marianne, this is your husband, Chris.” Continue reading “Meet For The First Time . . . Again -part 2”

Illness - Encephalitis

Meet For The First Time . . . Again – part 1

me-2_edited-1

It’s now time to share a few facts about the illness that unexpectedly showed up that one December day twenty-eight years ago.

Technically, it’s a combination of two types.

1) Meningitis: infection of the membranes that surround the brain and spinal cord

2) Encephalomyelitis: infection of the brain and spinal cord
Continue reading “Meet For The First Time . . . Again – part 1”